In this audio recording, Noreen is in conversation with Rachel Thompson (Research Associate in Information Governance and Public Involvement, in the Department of Population Data Science, Swansea University School of Medicine). Rachel’s project is called: “Wales’ Citizen Engagement with Responses to Covid-19”, and in this chat she describes one part of it, which was about running online engagement with members of the public, around attitudes to the track and trace app. This episode was recorded […]
Tag: public engagement
Research: the language of “public engagement”

Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives Woolley, J. P., McGowan, M. L., Teare, H. J. A., Coathup, V., Fishman, J. R., Stterstenjr, R. A., Sterckx, S., Kaye, J., and Juengst, E. T. (2016) BMC Medical Ethics Abstract: The language of “participant-driven research,” “crowdsourcing” and “citizen science” is increasingly being used to encourage the public to become involved in research ventures as both subjects and scientists. […]
Patient and public involvement in research

How might patient involvement in healthcare quality improvement efforts work—A realist literature review ORIGINAL RESEARCH PAPER Bergerum, C., Thor, J., Josefsson, K., and Wolmesjö, M. (2019) Health Expectations Abstract: This realist literature review, regarding active patient involvement in healthcare quality improvement (QI), seeks to identify possible mechanisms that contribute to success or failure. Furthermore, the paper outlines key considerations for organizing and supporting patient involvement in healthcare QI efforts. Two literature searches were performed. Altogether, […]
Citizens as active participants in integrated care: challenging the field’s dominant paradigms

Glimmerveen, L., Nies, H., and Ybema, S. (2019) “In our view, in order to realize ambitions of personcenteredness and population-based care, we should stop treating citizen participation as an add-on to an otherwise professional, organizational and institution paradigm. Likewise, we must refrain from idealizing participation as an easy remedy or an undisputed objective. In practice, the intricate tensions between systems and life-worlds are an inevitable part of the process of pursuing participatory care integration.” […]