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Author: Rachel Wolfendale

Involving the public in robust and trustworthy data sharing

Carnegie UK Trust: Adams, L. and Burall, S. (2019) ‘Involving the Public in Robust and Trustworthy Data Sharing’ is a summary of the next stage of work within Data for Public Benefit project. This short report further explores the value of a data sharing framework and how to ensure the public voice remains the central driving force within data-sharing […]

Research: behaviour change & health promotion

Developing a sexual health promotion intervention with young men in prisons: a rights-based participatory approach Templeton, M., Kelly, C., and Lohan, M. (2019) JMIR Research Protocols Background: The sexual health of young men in prisons is often among the poorest in any given country. They may have developed sexual behaviors that, from a public health perspective, […]

Co-creation: ‘What works here doesn’t work there’ (Wildman, J.M. et al., 2019)

The significance of local context for a sustainable and replicable asset‐based community intervention aimed at promoting social interaction in later life Wildman, J.M., Valtorta, N., Moffatt, S. and Hanratty, B. (2019)   What is known about this topic: Asset‐based community approaches are increasingly being used to improve health and well‐being. Asset‐based programmes harness resources within […]

The meaning of co-production for health care users and user organizations

An Ambiguous Concept: On the Meanings of Co-Production for Health Care Users and User Organizations? Ewert, B. and Evers, A. (2014) “If co-production is rooted in and initiated by civil society actors, promotes community-based knowledge on health and healthcare practices and gives co-producers sufficient entrepreneurial space, the much praised term may be something more substantial […]

Do the costs outweigh the benefits for health research?

The dark side of coproduction: do the costs outweigh the benefits for health research? (Oliver, K., Kothari, A., & Mays, N., 2019) “Coproduction is an exciting approach to research that can generate truly novel, unexpected outputs. However, it takes investment, skills, time and courtesy. Engaging stakeholders should be done for the right reasons and in […]

Public involvement in health outcomes research (Grundy, A. et al., 2019)

Public involvement in health outcomes research: lessons learnt from the development of the recovering quality of life (ReQoL) measures Grundy, A. et al., 2019 Note: this is not co-production, however the authors make an excellent point in their discussion regarding managing differing opinions and creating shared goals. “We think it is first important to acknowledge that […]

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